Privacy Policy
Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe are committed to protecting your online privacy. Because your privacy is important to us, we have developed this Privacy Policy for DefeatMSA.org, MSAUnited.org, MSA-Hub.Circle.so, HopeMSA.org, MoveForMSA.org, DefeatMSA.org.nz, MSAPartnership.org.uk, MSAIreland.ie, MSACanada.ca, NationalMSAResearch.org.au, and MSAShoe.org. This policy explains the circumstances under which we may collect, use, and disclose your personally identifiable information. It also describes the choices available to you regarding our use of your personal information and the steps you may take to access your information or request that we correct or delete it.
Use and Disclosure of Your Personal Information
Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe may collect personal information, such as your name, mailing address, telephone number, or email address, as well as demographic information, such as your ZIP or postal code or age.
When Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe receive personal or demographic information, we will use it only for reasonable purposes. For example, we may use this information to contact you by email or regular mail and provide information we believe may be of interest to you. We may also use this information to compile data and conduct analyses to better understand the needs of the MSA community and to support programs, research, education, advocacy, awareness, support services, and fundraising activities that further the missions of these organizations and programs.
In some cases, you may choose to provide Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, or the MSA Awareness Shoe with personal information to contact us, request communications by email or regular mail, volunteer, make a donation, participate in programs or events, or use one of our services.
Personally identifiable information will not be sold to other organizations or third parties. We may share information with service providers when necessary to process donations, fulfill orders, deliver communications, administer programs, maintain our websites, or provide other requested services. These service providers are authorized to use personal information only as necessary to perform services on our behalf or as otherwise permitted by law.
Examples of circumstances in which personal information may be requested for optional online activities include the following:
Contact Us
You may email us directly by selecting the appropriate link on a Contact Us page on one of our websites. Please note that this Privacy Policy may not protect unsolicited content, business information, ideas, suggestions, concepts, or inventions submitted to us. Such information may be used by Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe in accordance with our policies and applicable law.
Mailing Lists
To register for newsletters, updates, events, or other activities offered by Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, or the MSA Awareness Shoe, you may be asked to provide your name, mailing address, and email address, depending on the communications you request.
If you no longer wish to receive our communications, you may follow the unsubscribe instructions included in our electronic communications or contact us directly and request that your email address or physical mailing address be removed from the applicable mailing list.
Contributions
If you choose to make a financial contribution to Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, or the MSA Awareness Shoe, we may collect your name, contact information, billing information, and standard payment-card information, including the card number, card type, and expiration date. We will also maintain a record of your financial transaction.
Payment-card information is transmitted to and processed by the applicable payment processor. Full payment-card numbers are retained only as necessary to process the transaction or resolve payment-related issues and are handled in accordance with the payment processor’s security practices and applicable legal requirements.
Ordering Merchandise
If you choose to order merchandise associated with Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, or the MSA Awareness Shoe through an online store, we will maintain a record of your transaction. Any payment information will be handled as described in the Contributions section above.
Information Collected Automatically
To evaluate the use and effectiveness of our websites and determine how they may be improved, Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe may maintain regular logs concerning the use of website content and services.
Information collected may include pages viewed, browsers and devices used to access the websites, referring pages, search terms, IP addresses, and other technical or statistical data. We may review and share aggregated or de-identified statistical information with service providers or other organizations, provided that such information does not identify individual users.
Examples of technologies and information used for these purposes include the following:
Cookies
Cookies allow us to customize information and website features based on user preferences and to understand how visitors use our websites. Cookies are widely used on the Internet and have become an industry standard.
Although a cookie generally cannot identify you by itself, it may identify your browser or device. Your browser may be configured to accept cookies automatically. You may disable or restrict cookies by changing your browser settings or preferences. However, doing so may limit certain features or functionality of our websites.
IP Addresses
An Internet Protocol address, commonly referred to as an IP address, is a numerical identifier assigned to a device when it connects to the Internet.
Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe may collect IP addresses for website administration, security, troubleshooting, analytics, and auditing purposes. Each time you visit one of our websites or request a page, the applicable website server may record your IP address. We do not use IP addresses to identify individual users except when reasonably necessary to protect our websites, investigate suspected misuse, comply with legal obligations, or maintain security.
Information Security
Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe use reasonable administrative, technical, and organizational safeguards to help protect personal information.
Our websites use Secure Sockets Layer technology, or SSL, when secure communication is necessary. SSL is an encryption technology that helps provide secure communications over the Internet by verifying the identity of the server and encrypting information transmitted between the user and the website.
For example, SSL technology may be active when you make an online donation. This helps protect personal and payment information while it is being transmitted between your device and the applicable website or payment processor.
Although we take reasonable measures to protect personal information, no method of transmission over the Internet or electronic storage system can be guaranteed to be completely secure.
Email Links
When certain links on our websites are selected, they may automatically open a new email message using your default email application. This is a common website feature that allows you to send an email directly from your own email account.
Any message sent in this manner will have the same level of privacy and security as other messages sent through your email provider. Before sending the message, review the address shown in the To field. We may also provide a suggested subject line, text within the body of the message, or an attachment.
As with all email communications, please use caution regarding the information you send and the person or organization to whom you send it. Once the email is sent, the recipient will know your email address and will receive any other information included in your message or its attachments.
External Links
Except as otherwise indicated, this Privacy Policy applies only to your use of our websites and to information collected by Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe.
Our websites may contain links to websites operated by other organizations. We are not responsible for the content, security, or privacy practices of those websites. The inclusion of a link does not necessarily constitute an endorsement of the materials, services, or policies of the linked website.
You should review the privacy policy of each website you visit to understand what information it may collect and how that information may be used or disclosed.
Legal Requirements
Notwithstanding anything in this Privacy Policy to the contrary, Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe may disclose personal information when reasonably necessary:
- To comply with a valid legal requirement, including a law, regulation, search warrant, subpoena, court order, or other lawful governmental request;
- To protect the rights, property, safety, or security of Defeat MSA Alliance, MSA United, Move For MSA, HOPE MSA, Defeat MSA New Zealand Trust, MSA Partnership Ireland UK, MSA Ireland, and the MSA Awareness Shoe, our website users, or others;
- To investigate suspected fraud, misuse, security incidents, or violations of our policies; or
- In an emergency involving a physical threat to you or another person.
